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Showing posts with the label Gullain Barre Syndrome

A DAY BEFORE LONG NIGHTS - THE LANDING || PART 10

As I mentioned earlier, I was seeing double from the first day till now. My eyes did not improve even a little for many days. Everything I used to see was double. Two doors, two mobile phones, two coffee cups everything. The doctor said my pupils are not moving synchronously as they should and hence you are seeing two images of everything. The images are seen separately by both the eyes but our brain combines it as one, while in your case it is still two images. But, you will be fine with time. With time. This is a very vague sentence. There is no specific maximum limit nor there is any medicine. You will see normally with time. Hence, I waited for " the time ". Two days after I came home after being discharged, I picked up my father's phone, opened chrome browser and typed, GB Syndrome patients case studies . I wanted to know how much time? How everyone else have managed and how much time they took. I needed to know. I needed to be prepared at least. I read three case

A DAY BEFORE LONG NIGHTS - RECOVERY || PART 9

I was finally discharged from the hospital and was eager to go to my home and sleep in my bed. I was very happy. I reached my home and laid down. I was very weak. I was strictly allowed to have only semi solid diet. It meant eating only something which is thick, viscous like porridge. It was fed by a spoon to me. I was not able to hold the spoon and eat it myself. It went like this for a few days but soon I started eating myself. Many a times in my home I would desperately want to eat Indian bread. Even without eating it, I could feel the taste of it in my mouth. I would wait for the day when I will be eating through my mouth directly. Once I decided to chew the same semi solid food. It has been long since I chewed anything. Although it was semi solid, I still chewed it. It was a different feeling this time. I don't know but I felt like I am not chewing right. I felt my teeth grinding over each other, colliding which I have never felt before while eating. I was chewing right, it

A DAY BEFORE LONG NIGHTS - DISCHARGE || PART 8

" Calcium, Okay. Iron, almost okay. Nitrate, Okay., he is better now, you can have your private ward ", this sentence made my day. After long 10 days inside IMC ward I was finally sent to private ward. I was happy since I don't have to see people dying in front of my eyes, vomiting blood in front of me or getting fatal strokes. I was out of critical ward, I was out of IMC Ward no. 204. My family was happy. The doctor told another junior to take out the line going inside my groin and move me to the private ward. He quickly took the wire out and pressed the hole created due to the wire.  I had a last look at the IMC ward that day which was almost empty. There was no other patient that was present who was there when I was admitted. They came and went in a few days but no one stayed like me. It was almost empty with 2 other patients only. It was a sunny day, a hot afternoon. I can still feel the warmth I was feeling in the air during that time. My family packed up all the

A DAY BEFORE LONG NIGHTS - FRIENDS AND FAMILY || PART 7

"You don't choose your family, you get it", I had read this quote a long time ago and the first thing I imagined that time was my sister. Fighting with her almost everyday grooved this quote because I thought, I really would not have chosen her. My sister was informed about my condition a day after I was admitted. In the cab when I was going to the hospital, I asked my mother to call and tell her but my father said, don't worry, no need to get her distressed, you will be fine tomorrow . I was not sure. While in the hospital that night, I again asked my mother to call her and tell everything. I knew having her beside me would make me confident. The next day she came from Delhi. She wore purple Jockey top and had a calm look on her face. I don't know what she was thinking looking at her brother whose face was all distorted, but she was calm. She was the best support I could have possibly got with anyone's presence. She would motivate me everyday around thousand

A DAY BEFORE LONG NIGHTS - EXIT FROM IMC || PART 6

Twenty bottles of plasma (blood), five bottles of albumen, countless bottles of all the nutrients like iron, sodium, calcium were consumed by me. I was surviving on just drips and milk. It was my eighth day in the ward. I was not listening to "He is still weak" now. Two days back at 10 am when doctors arrived for their regular routine round checkup, my sister asked me to lift my hand so that I can warm up before they see. I told her, " Today I will not leave the doctor if he says no improvement to me ". The doctor arrived and asked me to lift my hand. I applied power equivalent to lifting a 14 kg household gas cylinder. I lifted my hands. Both of them upto my shoulder level like Hitler's salute. This time the words that came out of his mouth were different. He said, " There is very slight improvement, but there is, let's see what happens ". My sister was very happy. She could have danced in the ward if allowed to. I was happy to see her, while eve

A DAY BEFORE LONG NIGHTS - THE PATIENTS || PART 5

Before I go on to tell you about the other days that I spent and went through, I feel the need to tell you about the patients in my ward. I dedicate this chapter to four patients in my ward, who have left a significant impact on my memory. I never talked to any of those patients because I was not able to speak, but they all had different lives and different situations which forces me to write about them. You will know after reading, why among all these four are the only patients I would like to mention.     The first patient I recall was a woman. She was a healthy woman, wore a nice suit with flowers imprinted on it. She was healthy and was just brought to the ward. As I stated it was an IMC ward which had only critical patients under watch everytime. Even in the night. It was around 3 pm and I was talking to my sister. My sister was reading something from her phone. That lady had her husband with her who was sitting on the stool right beside her. Her husband wore a grey polo shirt

A DAY BEFORE LONG NIGHTS - THE ROUTINE || PART 4

I woke up by the noise of doctors' arrival in the ward. It was a routine check up that happened every morning at 10. They used to check the patients and decide the change in medicines, write reports and speak about the health. I was too weak. I couldn't sit without reclining the bed. My double vision was same as it was two days earlier. I could see everything if my head was kept straight like an owl and my pupils did not move. To see anything I had to move my head and still I would see everything double. I was most concerned about my eyes. I could recall the episodes of, " Monsters inside me" where the narrator would speak again and again that we cannot reverse the damage to the eyes. The doctor arrived at my bed. He checked if there are any improvements. He asked me to lift my hand, which obviously I couldn't. He asked me to fold my hand and then lift it, which obviously I couldn't. He took his pen and kept it in front of me, still holding, and moved his han

A DAY BEFORE LONG NIGHTS- THE HOSPITAL || PART 3

I woke up next morning. It was a long night's sleep, I guess more than 10 hours. My condition had worsened. My hands and legs were almost paralyzed. They had lost all the control from my brain and it was even hard for me to push myself to sit on the bed. Although I sensed it coming, I did not get worried about it. It was the first time I glanced at other patients. Almost every patient was having the tube in their nose like mine and drips in their veins. I was in the right most corner along the wall. Every patient was on the left side of me and it was really hard for me to turn my head to left because it felt like the tube is scratching inside my throat when I am turning my head left due to which later many doctors standing on my right used to complain jokingly that I am ignoring them. I told my father I had to go to pee. It was impossible for me to even get down from bed without anyone's support. He took me to the washroom by holding me with both the hands and every patient al

A DAY BEFORE LONG NIGHTS- THE ADMISSION || PART 2

The window showed me all the delicacies I had enjoyed in my college life going past me as I was travelling to another hospital from the Max hospital  as I just got to know I have contracted GBS and was GBS positive. Dr Deepak Goyal had advised us to go to another hospital called Himalayan Hospital keeping in mind all the routine checkups so that I don't have to travel too much in that condition and assured me the best of treatment of GBS there as his very good friend and his teammate Dr Manish Mittal will be treating me. The walking was becoming harder and harder for me as the GBS was dominating over me. I had to take a wheelchair for the exit. I sat in the cab to go to another hospital. MISSED PART 1? READ HERE     My condition was worsening but I took my mind out of it and started seeing the roads and the shops where I had spent four years of my life in Dehradun. I saw a shop and a memory would pop up and another crossroad would bring another memory. I was smiling fo

A Day Before Long Nights - The Start of GBS || Part 1

I took my empty bag, I took my jacket, dressed in college uniform I started my ride. I was going to my college to give my final semester presentation for the project I had done in LTI, Mumbai . I was happy about the fact that after today, there will be no exams, no attendance and my college life would be over. I had my days planned. Since I had been on the flight from Mumbai to Delhi to come home, I had planned all my days. I wanted to learn driving at a driving school. I wanted to learn swimming. I wanted to go to the gym. I wanted to go on at least three trips in one month. I had all planned but I guess life had other plans for me.       I gave my presentation to a four-judge panel out of which three were ladies. They were chit-chatting and I don't remember any of them listening to me after I told them the company and brief of the project. My presentation was over as soon as they told me "Thank You". It was a moment of epiphany. My college was over with that s
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